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A WOMAN who was once suicidal due to having a rare disorder that causes scaly skin, now is living life to the full. Mui Thomas, who resides in Hong Ko (more)

A WOMAN who was once suicidal due to having a rare disorder that causes scaly skin, now is living life to the full. Mui Thomas, who resides in Hong Kong, suffers from a rare skin disorder called harlequin ichthyosis. Harlequin ichthyosis causes scaly skin, which cracks creating open wounds that leave suffers vulnerable to infection. The oldest survivor of harlequin ichthyosis is 35 years of age. At 26 now, Mui is one of the oldest known survivors and the world's first rugby referee living with this condition.

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